18 GUIA
É importante pedir o seu Cartão de Pessoa com Doença Rara!
Tem como objetivo transmitir a informação clínica mínima essencial para ser, si-multaneamente,
fator de proteção e segurança clínica para portadores de doen-ças
raras e auxílio de boa prática clínica para a equipa terapêutica que o atende
em situação de emergência ou urgência.
CONTACTOS
APDIP Associação Portuguesa de Doentes com Imunodeficiências Primárias
Site: www.apdip.pt
E-mail: geral@apdip.pt
https://www.facebook.com/apdippt
https://www.instagram.com/apdippt/
https://twitter.com/apdippt
CENTROS DE REFERÊNCIA DE IDP
Porto
Centro Hospitalar Universitário do Porto - Hospital Geral de Santo António
Coimbra
Centro Hospitalar e Universitário de Coimbra
Lisboa
Centro Hospitalar Universitário Lisboa Norte – Hospital Santa Maria
Centro Hospitalar Universitário Lisboa Central – Hospital Pediátrico D. Estefânia
Faro
Centro Hospitalar Universitário do Algarve
Funchal
Hospital Dr. Nélio Mendonça
BIBLIOGRAFIA
Common Variable Immune Deficiency (1st edition). © International Patient Organisation for Primary Immunodeficiencies (IPOPI), 2018
Primary immunodeficiencies and allergies (1st edition). © International Patient Organisation for Primary Immunodeficiencies (IPOPI), 2017
Primary immunodeficiencies and infections (1st edition) © International Patient Organisation for Primary Immunodeficiencies (IPOPI), 2017
Primary immunodeficiencies and psychological management (1st edition) © International Patient Organisation for Primary Immunodefi-ciencies
(IPOPI), 2017
Primary immunodeficiencies — Treatments for primary immunodeficiencies: a guide for patients and their families (1st edition), January 2012
Primary immunodeficiencies — Primary immunodeficiencies and plasma-derived therapies (1st edition).
Primary immunodeficiencies – Vaccines and primary immunodeficiencies (1st edition). December 2013 © International Patient Organisation
for Primary Immunodeficiencies (IPOPI), 2013
How are primary immunodeficiency diseases classified? (1st edition) © International Patient Organisation for Primary Immunodeficiencies
(IPOPI), 2016
Primary immunodeficiencies — PIDs and gastrointestinal disorders (1st edition). December 2014 © International Patient Organisation for
Primary Immunodeficiencies (IPOPI), 2014
Primary immunodeficiencies and respiratory disorders (1st edition). December 2014 © International Patient Organisation for Primary Immu-nodeficiencies
(IPOPI), 2014
Primary immunodeficiencies — Subcutaneous infusions: a practical guide for patients (1st edition). December 2014
© International Patient Organisation for Primary Immunodeficiencies (IPOPI), 2014